RESOURCES
For more information about DES, call the DES hotline closest to you,
on of the DES consumer organizations, or the National Cancer Institute.
DES Hotlines
The Southwest DES Center
Baylor College of Medicine
1(800) DES-NEWS (1-800-337-6397)
(Texas and Louisiana only)
California Public Health Foundation
1(800) DES-NEWS (1-800-337-6397)
(Greater San Francisco Bay Area only: area codes 408, 415, 510, and 707)
Education Development Center, Inc.
1(800) DES-NEWS (1-800-337-6397)
(Massachusetts only)
New England Research Institutes
Long Island Jewish Medical Center
1(800) DES-NEWS (1-800-337-6397)
(Nassau and Suffolk Counties, New York City, New York only)
University of Wisconsin
1(800) DES-NEWS (1-800-337-6397)
(Illinois, Iowa, Minnesota, Nebraska, Wisconsin only)
Consumer Organizations
DES Action USA
1615 Broadway, #510
Oakland, CA 94612
1(800) DES-9288 or (510) 465-4011
A national consumer organization representing DES mothers, daughters and
sons. Dedicated to informing the public and health professionals about the
effects of DES and what can be done about them, and to promoting DES research.
Offers physician referrals, special publications, and a quarterly newsletter
(DES Action Voice).
DES Cancer Network
1678 Shattuck Ave., #52
Berkeley, CA 94709-1631
1(800) DES-NET-4 FAX: (207) 872-0921
A national network for DES-exposed women and men with a special focus on
DES research advocacy, programs for DES-exposed people coping with cancer,
and communication about DES issues. Offers information, peer support, medical
referrals, and a newsletter (DES Issues).
DES Sons Network
104 Sleepy Hollow Place
Cherry Hill, NJ 08003
(609) 795-1658
A national network providing information and support for men exposed to
DES before birth (DES Sons), and counseling for men with testicular cancer.
National Cancer Institute
Cancer Information Service
M-F 9:00 am to 7:00 pm
1(800) 4-CANCER or 1(800) 422-6237
A national service providing accurate, up-to-date information on cancer
to patients and their families, to health professionals, and to the general
public.
Other Booklets in This Series
Call the DES Hotline closest to you or any of the DES Consumer organizations
to request other booklets in this series.
DES Fact Sheet
DES: Introductory Booklet
DES Daughters
DES: The Basic Booklet
Women Who Took DES
Talking About DES: A Guide
for Families
Clear Cell Cancer
The National
DES Education Program: A Description
National DES Education Program
On October 9, 1992, Congress approved an amendment to the Public Health
Service Act to carry out research and education on the drug DES (diethylstilbestrol).
In 1993 the National Cancer Institute and the National Institutes of Child
Health and Human Development launched the National DES Education Program.
Five geographic areas are currently included in this program: California,
Massachusetts, Texas, Wisconsin, and New York.
This booklet is one of a series that provides health information about DES,
and includes the most recent information about medical risks associated
with it. Recommended actions for early detection and treatment of DES-related
medical conditions are described in full. We hope this publication will
help the millions of mothers, daughters, and sons exposed to DES.
National Cancer Institute
National Institute of Child Health and Human Development
National Institutes of Health
Baylor College of Medicine
California Public Health Foundation
Education Development Center, Inc.
New England Research Institutes
University of Wisconsin
DES Action USA
DES Cancer Network
DES Sons Network
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