Lombardi Cancer Center Cancer Genetics Network Center (Georgetown University) C&E Working Group: Chanita Hughes, Beth Peshkin
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
		pending	General information for genetic counseling and testing for probands
Breast/Ovarian Cancer
			Breast cancer Web page, including FAQs Ovarian cancer Web page, including FAQs	CARE (Cancer Assessment and Risk Evaluation) -- BRCA1/2 pre-test educational and post-test education materials: general brochure do you have a family history of breast or ovarian cancer (brochure) information packet Breast & Genetic Testing (brochure)
Colon Cancer
			Web page, including FAQs
Prostate Cancer
			Web page, including FAQs

Mid-Atlantic Cancer Genetics Network Center (Johns Hopkins University) C&E Working Group: Sharon Olsen, Karen Eanet
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
Helping Doctors and Families Fight Cancer (brochure) MACGN Registry Enrollment Form Informed consent: Consent to Participate – information to consider prior to consenting, presented in easy reading style and designed as a 3-fold flyer consent form		MACGN Newsletter quarterly since 1999	The Johns Hopkins Cancer Risk Assessment Program The Johns Hopkins Cancer Risk Assessment Program (physician referral guidelines card) MACGN Provider Enrollment Form Learning More About Cancer Risk: Questionnaire to Help Doctors and Scientists Fight Cancer Genetic Counseling for Cancer Risk (fact sheet)	Cancer risk assessment via family history form, annual CME conference, weekly cancer genetics CME seminar series under development
Breast/Ovarian Cancer
		BOSS News: A Newsletter of the Breast and Ovarian Surveillance Service, Spring 2000	Hereditary Breast Cancer in progress Hereditary Breast/Ovarian Cancer in progress	Genetic counseling and testing; breast cancer prevention seminars for public planned; A Woman's Journey conference
Colon Cancer
	under development		Cancer Screening Guidelines for Families with a History of Colon or Rectal Cancer Colon Cancer in Families: Information for Families with a History of Colon or Rectal Cancer or Polyps (booklet) Dietary and Lifestyle Changes to Reduce Your Colorectal Cancer Risk (brochure) The Johns Hopkins Guide for Patients and Families: Colorectal Cancer (booklet) The Johns Hopkins Guide for Patients and Families: Familial Adenomatous Polyposis (booklet) The Johns Hopkins Guide for Patients and Families: Hereditary Nonpolyposis Colorectal Cancer (booklet) The Johns Hopkins Guide for Patients and Families: APC I1307K Gene Mutation (booklet) Peutz-Jeghers Syndrome: information under development	Three studies underway on behavioral and psychological outcomes after genetic testing, genetic counseling methods (in-person versus telephone), and attitudes toward a genetic test
Prostate Cancer
		Prostate Cancer Update	Hereditary Prostate Cancer Fact Sheet	Hereditary prostate cancer study underway. CGN pilot project underway.
Pancreatic Cancer
			Hereditary Prostate Cancer Fact Sheet in progress

North Carolina-Georgia Cancer Genetics Network Center (Duke University, Emory University, and University of North Carolina) C&E Working Group: Celette Sugg Skinner (Duke), Sydnee Steadman (Duke), Cindy Smith (UNC), Angela Trepanier (Emory)
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
		Newsletter semi-annually since Spring 2001		Planning Educational Programs -- a guide to planning health-related educational symposia. The guide is based on experience hosting the symposium "Cancer Genetics: Answers to Your Patients' Questions" in 1999.
Breast Cancer
			Hereditary Breast and Ovarian Cancer (fact sheet) Screening Recommendations for Individuals at High Risk... (fact sheet)	Standard and tailored BRCA1/BRCA2 information materials are provided from earlier study
Colon Cancer
			Hereditary Colorectal Cancer (fact sheet) Screening Recommendations for Individuals at High Risk of Developing Colorectal Cancer (fact sheet)
Thyroid Cancer
			Medullary Thyroid Cancer and Multiple Neoplasia Type 2 (fact sheet)

Northwest Cancer Genetics Network (Fred Hutchinson Cancer Research Center) C&E Working Group: Deborah Bowen, Karma Kreizenbeck, Nigel Bush, Ksenia Peters
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
			Help Us Understand More About Inherited Cancer Risk (fact sheet)
Breast Cancer
			Breast cancer risk booklet	Telephone counseling for average risk women, psychosocial group counseling
Colon Cancer
			Familial colorectal registry recruitment brochure drafted
Melanoma
				Considering development of a pilot project

Rocky Mountain Cancer Genetics Coalition (University of Utah, University of Colorado, and University of New Mexico) C&E Working Group: Vickie Venne, Huntsman Cancer Center, University of Utah; Lori Ballinger, University of New Mexico
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
			Informed consent: Consent to Participate –information to consider prior to consenting, presented in easy reading style and designed as a 3-fold flyer consent form
Breast Cancer
			When Breast Cancer Runs in Families: The Genetic Story (easy reading booklet, out-of-print)

Texas Cancer Genetics Consortium (University of Texas M.D. Anderson Cancer Center, Health Sciences Center at San Antonio, and Southwestern Medical Center at Dallas, and Baylor College of Medicine) C&E Working Group: Jo Ann Ward, Amelie Ramirez, Kipling Gallion
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General

UC-UCI Cancer Genetics Network Center (University of California at Irvine) C&E Working Group: Jill Yonago, Lari Wenzel
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
		Annual follow-up newsletter	Cancer Genetics (educational brochure) Small group seminars planned
Breast/Ovarian Cancer
		Newsletter from previous study developed and sent to potential recruits
Prostate Cancer

University of Pennsylvania Cancer Genetics Network C&E Working Group: Jill Stopfer
Recruitment Brochure	Website	Newsletter	Other Materials	Educational Intervention
General
		Family Cancer Forum,1999. Sent to all research and clinical participants in cancer genetics programs and studies	Informed consent: Consent to Participate – information to consider prior to consenting, presented in easy reading style and designed as a 3-fold flyer consent form Cancer Genetics Network Interview
Breast/Ovarian Cancer
	Breast Ovarian	Family Cancer Forum, as above	Genetic Testing for Breast and Ovarian Cancer Risk: An Informational Guide (booklet) Risk Factors for Breast Cancer: An Informational Guide Risk Factors for Ovarian Cancer: An Informational Guide (booklet)	Discussion of CGN at all Cancer Risk Evaluation Program encounters, presentations at rounds, education sessions for CGN network hospitals
Colon/GI Cancer
		Family Cancer Forum (as above)
Prostate Cancer
		Family Cancer Forum (as above)
Melanoma
Pediatric Cancers, (e.g., Li-Fraumeni syndrome, retinoblastoma, Wilms' tumor)