Instruments and Questionnaires
Supported Surveys
Data on Cancer Incidence & Mortality (SEER)
 NCI's Surveillance, Epidemiology, and End Results (SEER) Web site is the most authoritative source of information on cancer incidence and survival in the United States. SEER data, publications, and resources are available free of charge. The site's new Fast Stats function allows users to obtain charts, graphs, and tables for cancer incidence, mortality, and survival.
The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about elderly persons with cancer. The data come from the Surveillance, Epidemiology and End Results (SEER) program of cancer registries that collect clinical, demographic and cause of death information for persons with cancer and the Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.
National Longitudinal Mortality Study
In a collaboration begun in 1999 with the Census Bureau and other federal agencies, NCI is working to overcome the limited availability of sociodemographic information on death certificates and to obtain self-reported racial/ethnic data. This has involved the extension and expansion of the US National Longitudinal Mortality Study (NLMS) and linkage to the National Death Index. Other sponsoring agencies are the National Heart, Lung, and Blood Institute; the National Institute on Aging; and the National Center for Health Statistics. Expected to add data on 60,000 cancer deaths, this linkage will allow an in-depth analysis of racial/ethnic, socioeconomic and occupational differentials in cancer mortality for the major cancer sites.
Health Disparities Reports & Related Links
Making Cancer Health Disparities History - Progress Review Group Report -
March 2004
A report from the trans-HHS Cancer Health Disparities Progress Review Group.
Presents recommendations to HHS to be implemented by agencies to reduce or
eliminate cancer health disparities.
Bibliography of Tobacco-Related Literature on Hispanics/Latinos 1990-2001:
Provides a comprehensive list of tobacco-related scientific literature pertaining to the Hispanic/Latino population.
Speaking of Health: Assessing Health Communication Strategies for Diverse Populations:
 Speaking of Health looks at the challenges of delivering important messages to different audiences. Using case studies in the areas of diabetes, mammography, and mass communication campaigns, it examines the ways in which messages must be adapted to the unique informational needs of their audiences if they are to have any real impact. The book looks at basic theories of communication and behavior change and focuses on where they apply and where they don't. In an age where we are inundated by multiple messages every day, this book will be a critical tool for all who are interested in communicating with diverse communities about health issues.
NCI's Special Populations Networks – Joining to Reduce the Burden of Cancer
Intercultural Cancer Council:
Provides Cancer Facts for Special Populations (African-Americans, American Indians and Alaskan Natives, Asian-American and Pacific Islanders, Hispanics, Rural Poor and Medically Underserved Americans)
Brian D. Smedley, Adrienne Y. Stith, and Alan R. Nelson. (2002). Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, Board on Health Sciences Policy.
 This report is the most exhaustive analysis of the disparities in treatment and health outcomes. Requested by Congress, the information shines a harsh light on the effects of patient stereotyping and of an expensive health system that often forces patients to ration their own care. Researchers identify language barriers, inadequate insurance coverage, bias among doctors and nurses, and a woeful lack of minority physicians as reasons why nonwhite patients receive fewer tests and inferior treatment.
 Hanna, K., Coussens, C. (2001).Rebuilding the Unity of Health and the Environment: A New Vision of Environmental Health for the 21st Century. Washington, DC: National Academy Press.
The Institute of Medicine's Environmental Health Sciences Roundtable was formed to provide a neutral place for debates of the current issues in environmental health. This book summarizes the discussions that occurred during the 2-day IOM workshop.
 Institute of Medicine. (2001).Informing the Future: Critical Issues in Health. Washington, DC: National Academy Press.
This booklet provides an overview of the work of the Institute of Medicine and highlights its important policy measures that are planned, suggested, or in process.
 Singer, B.H., Ryff, C.D. (eds.). (2001).New Horizons in Health: An Integrative Approach. Washington, DC: National Academy Press.
This is a report of suggestions supporting areas of high priority provided by the Committee on Future Directions for Behavioral and Social Sciences Research at the National Institutes of Health.
 Smedley, B.D., Syme, S.L. (eds.). (2000). Promoting Health: Intervention
Strategies from Social and Behavioral Research. Washington, DC: National Academy Press.
The Institute of Medicine Committee on Capitalizing on Social Science and Behavioral Research to Improve the Public's Health was charged to help identify promising areas of social science and behavioral
research that may address public health needs. This report serves to assess whether the growing knowledge base of literature has been useful, or could be useful, in the development of broader public health interventions.
 Stoto, M.A., Green, L.W., Bailey, L.A. (1997). Linking Research
and Public Health Practice: A Review of CDC's Program of Centers for Research and Demonstration of Health Promotion and Disease Prevention.Washington, DC: National Academy Press.
CDC established a program of university-based Centers for Research and Demonstration of Health Promotion and Disease Prevention to explore improved ways of appraising health hazards and to serve as demonstration sites for new and innovative research in public health. This book examines the vision for the prevention research centers program, the projects conducted by the centers, and the management and oversight of the program.
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National Health Interview Survey (NHIS) Cancer Control Module
California Health Interview Survey (CHIS)
National Health & Nutrition Examination Survey (NHANES)
